ALZHEIMER’S MYTHS DEBUNKED

ALZHEIMER’S MYTHS DEBUNKED

Dr Moumita Misra, Head- Lab Operations (Mumbai), Metropolis Healthcare

Named after German doctor Dr. Alois Alzheimer, Alzheimer’s Disease has become a disease of intrigue and ambiguity among the general population. It is the commonest cause of dementia, which can be loosely described as impaired memory leading to the inability to remember, think, or make decisions that interfere with everyday functioning. According to the Alzheimer’s Association, 10% of all people over the age of 65 and more than 50% of people over 85 have Alzheimer’s disease. In India, >8.8 million people are suffering from dementia, and the major cause is Alzheimer’s disease (a CSIR-National Institute of Science Communication and Policy Research study). Lack of accurate public knowledge and common myths surrounding the disease are mainly obstructing diagnosis, patient care, and adequate support. It is high time we address those misconceptions about Alzheimer’s as the expected global increase of dementia and AD by 2050 would be a whopping 166% as per the Global Burden and Disease Study with India having the second largest affected population.

Myth 1: Symptoms of Alzheimer’s are part of normal aging
Occasional memory problems are normal with aging. However, in Alzheimer’s disease, there is deposition of abnormal plaques or proteins in brain tissue leading to malfunction and ultimately degeneration of brain cells. This results in difficulty in performing daily tasks and progressive deterioration.

Myth 2: Dementia and Alzheimer’s are the same disease
Alzheimer’s is one of the causes of dementia. In fact, it is the most common cause of dementia (60-70%). However, dementia can also occur due to other reasons like head injury, repeated brain stroke, alcoholism, Parkinson’s disease, drug intoxication, vitamin deficiency, number of chronic infections, liver or kidney failure, genetic/degenerative disorders, brain tumors, etc.

Myth 3: Alzheimer’s means only memory loss
Alzheimer’s disease is not only about forgetting names and events. Although the symptoms may start with simply that with disease progression, it will gradually lead to increased confusion, withdrawal from social interaction, difficulty with language, emotional outbursts, hallucination, delusion, paranoia, anxiety, and many more complications

Myth 4: Alzheimer’s is a disease of developed Western nations
As per WHO, over 60% of dementia and Alzheimer’s cases are from low and middle-income countries. So, there is no reason to justify that myth. In fact, India is going to have a major share of global dementia and AD patients in the next 25 years as per estimation. As our life expectancy increases due to better health care, the prevalence of Alzheimer’s is also going to increase as it is primarily a disease of old age.

Myth 5: If my parents, grandparents, uncle, and aunt are having Alzheimer’s, I am also going to develop the disease
The risk of developing Alzheimer’s is more with a positive family history but there is no certainty in it. Not all patients with Alzheimer’s have any family history. Scientific studies have found some genetic correlation in many patients, but definite causation is yet to be discovered.

Myth 6: If I am forgetting things, I am having Alzheimer’s
Forgetfulness may be simply due to stress, vitamin deficiency, hormonal imbalance, chronic infection, and many other treatable causes. Please consult your doctor for a proper diagnosis

Myth 7: Flu vaccines can cause Alzheimer’s
Extensive studies have proven this myth to be completely false. Flu vaccines save thousands of lives every year and improve life expectancy, especially among the elderly population

Myth 8: Aluminium utensils can cause Alzhemimer’s
Research showed the presence of an increased amount of aluminum in the brain tissue of deceased Alzheimer’s patients, but a direct link between Aluminium and Alzheimer’s and the mechanism of disease causation has not yet been discovered.

Myth 9: Artificially sweetened drinks can cause Alzheimer’s
Although a direct link is yet to be found, artificially sweetened drinks for sure increase the risk of having brain stroke and thereby having more chance of developing dementia.

Myth 10: You can prevent Alzheimer’s disease with supplements
There are no scientifically proven drugs or supplements available to prevent, delay treat, or cure Alzheimer’s. However, maintaining a healthy lifestyle by controlling high blood pressure, maintaining a healthy weight, staying mentally and physically active, and sleeping 7-9 hours every night will help reduce the risk.

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Young Thalassemia Survivor meets German Lifesaver, Emotions Run High

Roman travelled all the way from Germany to meet Chirag on World Thalassemia Day

Bangalore, May 08, 2024. In a heart-warming moment, 17-year-old Chirag, a thalassemia survivor from India, finally met the man who gave him a second chance at life his stem cell donor, Roman Simnizki from Germany. Chirag battled thalassemia, a genetic blood disorder that significantly impacts patients’ quality of life. For most of his childhood, Chirag had to endure fatigue and other health complications along with regular blood transfusions.

For ten years, his family tirelessly searched for an unrelated donor. Their efforts finally yielded results in 2016 when a perfect match was found Roman, a 29-year-old from Münsingen, Germany, through the DKMS database.

“Meeting Roman was an overwhelming experience,” shared Chirag. “Words cannot express how thankful I am for his selfless act. He didn’t just donate stem cells; he gave me a future.”

Roman, who travelled to India to meet Chirag, echoed the sentiment. “There’s no greater joy than knowing you’ve helped someone in need. Seeing Chirag healthy and full of life is the biggest reward.”

The emotional meeting, filled with gratitude and joy, marked the culmination of a life-changing journey for Chirag and Roman. Chirag, now free from the limitations of thalassemia, can dream of a bright future. Roman’s act of altruism, a simple cheek swab, and later blood stem cell donation, has demonstrably changed a life across continents. Chirag’s parents, who witnessed their son’s struggle and eventual recovery, expressed their heartfelt appreciation to Roman for his selfless act.

Chirag’s treating physician, Dr Revathi Raj, Paediatric Haematologist, Apollo Hospitals Chennai, said, “There is a significant burden of Thalassemia in our country, as more than 10,000 children are born with the disease every year. Beta-thalassemia major is a severe form of the disease that requires regular blood transfusions and, potentially, a stem cell transplant for a cure. I am happy that today Chirag is recovered and a bright future awaits him. I hope more people like Roman register as potential stem cell donors so more patients can undergo lifesaving stem cell transplants.”

In a stem cell transplantation, healthy blood stem cells from a matching donor are infused into the patient to help resume healthy blood production. The best stem cell transplant outcomes happen when a patient’s human leukocyte antigen (HLA) and the HLA of a potential donor. This is much more complex than matching blood groups. About 30% of patients find an HLA- matched donor within the family; however, the rest, 70% of the patients, have to look for an “unrelated” donor with matched HLA.

Talking about the DKMS-BMST Thalassemia program, Patrick Paul, CEO of DKMS-BMST, said, “To support Thalassemia patients in India, we have launched the DKMS-BMST Thalassemia program. Under this program, DKMS-BMST collaborates with local NGOs and transplantation clinics to organise camps where pediatric thalassemia patients and their families travel from far places, sometimes from very remote places in India, to give buccal swab samples for HLA typing. Samples from the camps are analysed in the DKMS laboratory based out of Germany and clinical matching reports of the same are provided. In cases where there is no HLA match sibling for a sick child, we also support unrelated donor searches for patients.”

“Donating blood stem cells is a voluntary act of solidarity with a seriously ill person. The availability of matching blood stem cell donors remains a significant challenge for Indian patients in need of life-saving transplants. India has a young population, so it is crucial to encourage more people to register as stem cell donors. Their continued participation in the registry significantly improves the chances of locating matching donors for patients requiring assistance,” said the spokesperson at the event, Dr. Sunil Bhat, Director & Clinical Lead, Pediatric Hematology, Oncology and Blood & Marrow Transplantation, Narayana Health.

Chirag’s journey serves as a beacon of hope for thalassemia patients and their families and highlights the impact of the DKMS-BMST Thalassemia program. It emphasises the critical role of organisations like DKMS-BMST in facilitating life-saving transplants and the profound impact of anonymous donors like Roman, who selflessly offer a chance at a healthier future.

To register as a potential stem cell donor, you must be a healthy Indian adult between 18 and 55. When you are ready to register, all you need to do is complete a consent form and swab the inside of your cheeks to collect your tissue cells. Your tissue sample is then sent to the lab to be analyzed for your HLA (Human Leukocyte Antigen) and listed anonymously on the international search platform for matching stem cell donors. If you’re eligible, register as a blood stem cell donor by ordering your home swab kit at http://www.dkms-bmst.org/register

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World Health Day: Experts call for equitable access to healthcare for blood cancer and blood disorder patients

BENGALURU, 5 April 2024: 25-year-old Puneeth suffered from thalassemia major, which is a genetic blood disorder characterised by abnormal hemoglobin production and low production of red blood cells, since he was only nine. Battling with thalassemia as a child came with multifaceted challenges in Puneeth’s day-to-day activities.

Since Puneeth was diagnosed with this disease in 2008, he has undergone blood transfusions at a charitable hospital on a regular basis. A stem cell transplant was the only curative treatment option for Puneeth’s condition. It was only in 2020 when a Hospital in Bangalore conducted a free HLA typing camp in association with DKMS-BMST at their centre, where Puneeth and his elder brother Prajwal gave their cheek swab sample for HLA (Human Leukocyte Antigen) typing. The result showed that Puneet found a perfect match with his brother.

However, owing to financial constraints, his family was hesitant towards the transplantation. This is where the DKMS BMST Patient Funding program stepped in to help Puneeth successfully undergo his transplant in September 2022 and receive a second chance at life. The transplant yielded success, and the family now looks forward to a positive future ahead.

Puneeth was fortunate enough to find a matching donor in his family, whereas over 70% of the patients diagnosed with blood cancer or blood disorder are unable to find a match and urgently need a matching unrelated donor. DKMS-BMST has a mission to give such patients a second chance at life by registering potential stem cell donors from across India.

Dr. Govind Eriat, Consultant Hematology, Hemato-Oncology, and Bone Marrow Transplant at BGS Gleneagles Global Hospital, Bengaluru, said, “Karnataka bears a considerable burden of blood cancer and blood disorder cases contributing substantially to the state’s healthcare burden and the national statistics of over 100,000 cases annually. Stem cell transplants offer a ray of hope for patients battling this disease, providing them with a second chance at life. However, accessibility to combat this disease often remains a challenge, especially for economically underprivileged people. Initiatives like DKMS-BMST Thalassemia and patient funding programs provide critical support to those unable to get access to transplantation and help them get a second chance at life.”

Patrick Paul, CEO of DKMS BMST Foundation India, said, “Aligned with the theme of World Health Day “My Health, My Right,” we believe that everyone, regardless of background or circumstance, deserves access to quality health services, information, and the resources needed to live a healthy life. Through the Patient funding and and Thalassemia programs, DKMS-BMST has been instrumental in democratising access to stem cell transplantations nationwide. To achieve this, we have created an effective and streamlined program structure so we can help as many patients in need as possible. By alleviating financial constraints and fostering collaborations within the healthcare sector, we strive to empower individuals like Puneeth with the opportunity for enhanced quality of life and renewed hope.”

While advancements in medical science have improved outcomes for blood cancer and blood disorder patients, a significant hurdle remains – the availability of Human Leukocyte Antigen (HLA)-matched stem cell donors. An HLA match is crucial for a successful stem cell transplant, and the likelihood of finding a match is highest among individuals of similar ethnicity.
The current pool of potential stem cell donors is insufficient to meet the needs of all blood cancer and blood disorder patients. This disparity disproportionately affects Indian patients, who have a lower chance of finding a match due to limited donor diversity. Unfortunately, only 0.03% of the Indian population have registered as potential donors. This increases the need for more people of Indian ethnicity to register themselves.

To register as a potential stem cell donor, you must be a healthy Indian adult between 18 and 55. When you are ready to register, all you need to do is complete a consent form and swab the inside of your cheeks to collect your tissue cells. Your tissue sample is then sent to the lab to be analyzed for your HLA (Human Leukocyte Antigen) and listed anonymously on the international search platform for matching stem cell donors. If you’re eligible, register as a blood stem cell donor by ordering your home swab kit at http://www.dkms-bmst.org/register

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MyThali by Arogya World organized “Run In Red” even to raise awareness about Women’s Heart Health

National, 10th March 2024: MyThali, a program of Arogya World, organized the “Run In Red” event at Shalini Grounds, Jayanagar 5th Block, Bengaluru, in honor of International Women’s Day. The event aims to raise awareness about the importance of women’s heart health, acknowledging women as the heart of the family.

The event witnessed hundreds of enthusiastic Bangaloreans from all walks of life, gathered for a 3km Walk-Jog-Run walkathon, wearing red to show unity and support for women’s heart health. The event provided an opportunity to raise awareness about a crucial topic that is frequently disregarded in our culture.

In addition to the walkathon, “Run In Red” provided participants with free health screening, professional advice on heart health and fitness, a dynamic warm-up & cool down workout session, and a delicious organic breakfast. Participants were also able to speak with healthcare professionals and fitness experts to learn more about maintaining a healthy heart.

Dr. Meghana Pasi, Head – MyThali, Arogya World says, “We are happy with the enormous reaction to ‘Run In Red’ and the Bengaluru community’s support towards women’s heart health. By wearing #RedForHer Heart, we are delivering a strong message about the significance of prioritizing women’s heart health and well-being.”

The “Run In Red” event was more than simply a walkathon; it was a celebration of women’s strength and essential contributions to our families and communities.


Arogya World is a US-based global health non-profit organization working to prevent non-communicable diseases (NCDs), through health education and lifestyle change. Their mission is reflected in their very name – Arogya in Sanskrit means to live a life without disease.

MyThali is Arogya’s nutritional initiative. The Goal of MyThali is to change the way India eats – it is nothing short of that. My Thali addresses the most common challenge to healthy eating: people are confused about what to eat and in what quantities. It teaches people about the importance of Poshan (good nutrition) and Portion.

Follow @my.thali on Instagram for more information.

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Changing mindsets is essential to making ear and hearing care accessible

At the press meet held at Press club of Bangalore, Director of NAYAK’S SPEECH &HEARING CLUNIC Dr. M. S. L. Nayak said,March 3 is World Hearing Day, an important observance by the World Health Organization (WHO). This is an opportunity to raise awareness about how to prevent deafness and hearing loss; and promote ear and hearing care around the world.

The world hearing day 2024 will focus on overcoming challenges posed by societal misperceptions and stigmatizing mindsets through awareness-raising and information-sharing targeted at the public and health care providers.

The theme for 2024 is Changing Mindsets -“let’s make Ear and Hearing care: a reality for all!”

WHO recognizes that over 80% of people globally who require hearing care is not receiving it. Social misperceptions and stigmatizing mindsets are the factors that hinder efforts to prevent and address hearing loss.

The main objectives of the campaign will be to dispel misconceptions, provide evidence-based information to reshape public perceptions of hearing loss and facilitate access to ear and hearing care services to all who need it, as an essential health service.

Hearing loss adversely affects acquisition of speech-language, learning, academic, psychological, social, economic aspects of an individual and in turn national productivity. While children with hearing loss fall behind in academics, most adults face prospect of unemployment. Those who are lucky to be employed earn low wages. More ever, it can lead to all sorts of health problems, including depression and anxiety, and is linked with dementia.

HIGHLIGHTS

Worldwide hearing loss is on the rise and currently it affects 1.5 billion people and may increase 1.5-fold to 2.5 billion by 2050. While 1 in 4 will have some degree of hearing impairment, 1 in 10 people – will have disabling hearing loss by then.

430 million people – require rehabilitation (including 34 million children).

Among those older than 60 years; over 25% are affected by disabling hearing loss.

1 billion young people are at risk of avoidable hearing loss, and around 200 million suffering with preventable or treatable chronic ear infections.

63 million people in India, suffer from hearing loss. As per NSSO 2001 survey 291 persons (including large percentage of children in the 0 to 14 age group) per one lakh population have severe to profound hearing loss.

In Karnataka, we have 4 million people (including 20,839 children in 0-6 years) with it.

While half of the cases are preventable, unaddressed hearing loss poses an annual cost of nearly US$I trillion globally towards educational, social support and lost productivity

The sustainable development goals for 2030 requires that all people, including those with hearing loss and ear diseases, have access to high quality services without experiencing financial hardship

Scaling up services in the next 10 years, through the H.E.A.R interventions will require only an additional annual per capita investment of US $ 1.33. This is equivalent to an annual additional investment cost of over Rs.7000 crore for India alone.

. The resulting health gain will avert nearly 130 million DALYS (disability adjusted life years). Investment in car and hearing care is cost-effective; we can expect a return of nearly 16 international dollars for every 1 dollar invested.

National Programme for Prevention and Control of Deafness (NPPCD) was launched in 2007 and is being implemented in 558 of 797 (2023) districts throughout India. It is high time we strengthen and expand it for the entire country.

On this occasion, Nayak’s Speech and Hearing Clinic in collaboration with ENRICH (Regd.) Rehabilitation trust will launch a “Free Hearing Screening programme” for infants. The program is intended to make services more accessible to the public to assess and monitor the baby’s hearing health in its first three years of life.

Shri B. Dayananda,I.P.S. Commissioner of Police Bangalore City will inaugurate the Free Infant Hearing Screening Programme at 250, Swamy complex 24th Main 2nd Phase J.P.Nagar, Bangalore

Free Hearing Screening Programme will help infants with hearing loss to acquire speech language skills naturally just like normally hearing infants. Families of babies detected to have hearing loss will be provided with professional guidance and support. Parents who suspect their child to have hearing problem or experiencing delayed hearing milestone may contact 080 42075691.

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